The Leigh Syndrome International Consortium
The Leigh Syndrome International Consortium is a patient-driven international research group comprised of five of the world’s leading mitochondrial disease patient advocacy groups. You can find more information on each group below.
The Lily Foundation is committed to finding a cure for mitochondrial disease through funding research, raising awareness and family support.
Mitocon ODV was formed in 2007 by a group of parents of children suffering from mitochondrial disease. Over the years, Mitocon has expanded and has become the leading association in Italy for all mitochondrial patients, adults and children, and for their families and the entire scientific community.
Mito Foundation supports people affected by mitochondrial disease, funds essential research into the prevention, diagnosis, treatment, and cures of mitochondrial disorders, and increases awareness and education.
People Against Leigh Syndrome (PALS) was formed in 2013 after William Martin, son of Neil and Lori Martin, was diagnosed with Leigh syndrome. PALS has built awareness of this unknown disease and raised funds to support the medical community in their quest to develop viable treatments and ultimately a cure.
The United Mitochondrial Disease Foundation (UMDF) promotes research and education for the diagnosis, treatment and cure of mitochondrial diseases and to provide support for affected individuals and families. Since its inception, the UMDF has funded more than $12 million in research, making it the leading non-governmental contributor of grants focused solely on mitochondrial disease.