Our Governance Structure
Governance Committee
The committee's role is to provide a final decision on budget and use of funds, taking into account the suggestions and recommendations of the other committees of the alliance. The committee will promote information about the project, involve other funders, include other Associations involved in LS. It is responsible for spreading results of the project.
Alison Maguire - Lily Foundation (UK)
Sean Murray - Mito Foundation (Australia)
Phil Yeske - UMDF (US)Scientific Oversight Committee
The committee's role is the scientific advisor of the Governance Committee. Over
Scientific & Medical Steering Committee
The committee's role is suggesting, developing and implementing scientific programs. Suggesting the inclusion of new centers who can participate to the project either in general or for specific activities.
Enrico Bertini - Ospedale Pediatrico Bambino Gesù (Italy)
Patrick Chinnery - University of Cambridge (UK)
John Christodoulou - Murdoch Children’s Research Institute (Australia)
Bruce H. Cohen - Akron Children’s Hospital (USA)
Marni Falk - Children’s Hospital of Philadelphia (USA)
Amy Goldstein - Children’s Hospital of Philadelphia (USA)
Richard Haas - University of California San Diego (USA)
Matthew Klein - BioElectron Corporation (USA)
Shamima Rahman - UCL Great Ormond Street Institute of Child Health (UK)
David Thorburn - Murdoch Children’s Research Institute (Australia)Patient Group Advisory Committee
The committee's role is to provide recommendations and feedback to the Governance Committee on project activities from a patient perspective. Members of this Committee are represented at various workshops.