Delivering tomorrow's treatments for today's patients

Our Governance Structure

Governance Committee Chart (1)

Governance Committee


The committee's role is to provide a final decision on budget and use of funds, taking into account the suggestions and recommendations of the other committees of the alliance. The committee will promote information about the project, involve other funders, include other Associations involved in LS. It is responsible for spreading results of the project.


Scientific Oversight Committee

The committee's role is the scientific advisor of the Governance Committee. Oversight the scientific correctness of the activities adopted by the Scientific Committee.


Scientific & Medical Steering Committee

The committee's role is suggesting, developing and implementing scientific programs. Suggesting the inclusion of new centers who can participate to the project either in general or for specific activities.


Patient Group Advisory Committee

The committee's role is to provide recommendations and feedback to the Governance Committee on project activities from a patient perspective. Members of this Committee are represented at various workshops.